“Crowned with Grace, Clothed in Honor”

Crowned with grace and clothed in honor

Is all I want to be:

To put on love and hope like socks –

Mercy like my favorite jeans.

Crochet me a sweater of peace,

Or knit a scarf from joy.

Imagine glory and patience

For work-a-day clothing,

Truth and holiness for dress up,

And pajamas of bliss.

Each brilliant fiber spun by God,

Dyed in eternity.

This wardrobe is free, though it cost me

Every earthly thing

To be

Crowned with glory and clothed in honor.

The Never-Ending Update

The hcg level dropped to 29 as of yesterday, so we are at least headed in the right direction.  The only kink now is I am running a fever, which is not a big deal unless it sticks around for awhile or goes any higher.  My body does not do fever well, so I feel like poop.  Other than that, I’ll go back on Monday for another blood draw to check the hcg level.  Again.  And hopefully I will feel a little less like poop tomorrow.

The Never-Ending Miscarriage

Forewarned is forearmed, so walk away now if you don’t want physical details.  We went back to the fertility specialist today for a follow-up and a next step discussion.  We were supposed to see another doctor tomorrow who might have taken a different tack, but her office called Friday to tell me she had resigned.  So no appointment tomorrow; we may wait a while and see if she turns up somewhere else, but I wonder if maybe God just shut that door to leave just the one open.

Today was largely what I expected: based on the hcg level last week, they drew more blood; the doctor reviewed the results of trying lovenox; and he recommended IVF based on the idea that maybe our embryos aren’t implanting in the right place.  Before I explain the blood work, we are going back in October to start the tests needed to begin IVF, which would put us somewhere in January starting the first cycle.  Given that our most recent loss isn’t really completely over yet, we would have to wait another month to start the process, and that would have put us waiting for a pregnancy test right before Thanksgiving if we started the IVF procedures as soon as possible.  We could end up pregnant anyway, but I’d prefer not to intentionally schedule a potential pregnancy (which I mostly see as a potential miscariage) at the start of the holiday season.  Christmas sucks enough for me without scheduling potential disasters to happen at the same time.

Now the blood work: I went last week for a repeat hcg check to make sure that the level was dropping.  It should be below 5 to be considered negative for pregnancy; anything over 25 is considered positive for pregnancy.  It was 46 last Wednesday.  That was slightly less than half of the highest level I had, but it was 54 the week before, which means it barely dropped over that week.  I’ve never had the level not drop to negative a week after a miscarriage.  It is not really unusual for it to take several weeks to drop back to negative, but it is unusual for me, and most of the people whose levels remain elevated for a while had hcg levels well over 1000 when they miscarried.  We won’t get results from today’s blood work until tomorrow because the person who processes the lab work was out of the office and will return in the morning.

Before anyone goes nuts and thinks that the hcg level remaining elevated could be a good thing, it’s not.  Remaining slightly elevated without going away is often called a missed miscarriage; in clinical terms it means that some “products of conception” remain somewhere in the body, which can cause a lot of fairly disgusting complications, infection and internal bleeding being among them.  So continuing to show positive on a pregnancy test does not mean we may still have a viable pregnancy.  There are plenty of chat room stories of women who had miscarriages but discovered several weeks later that they were still pregnant, but even they point out that the hcg numbers then continued to rise dramatically like they should have to begin with. All things are possible with God, so I can’t say he wouldn’t do that, but I can tell you I will be furious with him if that were the case for us right now.  I’m very sure it’s not because of the next explanation.

This is the part that I warned you about, so you have one more chance to walk away.  I have been bleeding for three weeks at this point.  I started bleeding lightly about a week before we got the news that my hcg levels were dropping.  The day after that news, I began what I assume to be the miscarriage, which was much heavier bleeding and cramping.  It slowed down after several days, and I expected it to stop in about a week, which is what I have done all but one time a few years ago.  That time I continued spotting (different from bleeding), but we had a negative hcg level.  I am still bleeding, and it even picked up the pace yesterday.  The doctor would like to watch this for another week or two to see if it resolves on its own.  The alternative is moderately invasive surgery.

I am SOOOOOOOOOOOOOOOOO frustrated right now, and I have no idea what to pray for.  I find that I am once again almost hoping that there’s a problem.  Surgery would mean a d&c and laparoscopy to try to find the pregnancy, and that is obviously not an ideal situation.  But surgery could possibly mean that they find the pregnancy, which might be useful in determining a definite course of action.  If it’s in the uterus, it would tell the doctor that IVF is not a good idea; if it’s outside the uterus, it would tell him that his hunch is right and we stand a pretty good chance of success with IVF.  While a natural resolution is obviously better, I have no words to describe what the potential for another two weeks of bleeding does to me.  Because of the low hcg level numbers, there’s really nothing to see by doing an ultrasound or pelvic exam, so the only option is to wait and watch.

If the hcg level has continued to drop based on today’s blood draw, then by next week it should be negative, and maybe this will end soon.  So I guess that would be the best news tomorrow.  I suspect that it will not be the news I get tomorrow, but that may just be the crazy hormones talking.  If the hcg level continues to hover for the next week or two, or if I develop any symptoms of a complication, then we will definitely be doing the d&c.  I just really want this to end immediately.  I started typing that sentence with “need” instead of “want,” but I realized that the only thing I need is to let go of this and wait and trust God to keep me sane.  Far easier said than done.  I’ll let you know what we find out tomorrow.

The Discipline of Disillusionment

It’s no secret I’m a big fan of My Utmost for His Highest, and today’s devotion (July 30 – I know it’s after midnight, so I’m a day late), “The Discipline of Disillusionment” is a great example of why I love reading this every day to help me dig deeper into Christ.  If you’d like to read it, you can click on the link on the side bar, or click on this link (assuming I posted this correctly): http://utmost.org/  You’ll have to choose July 30 on the calendar on the right side of the screen to get to this particular message.

The heart of the message is that we must not illusion ourselves in our relationships with others; if we choose to believe the illusion, we will be disappointed and cynical in our relationships when we are disillusioned by the imperfect actions of the person we’ve elevated to godlike status.  Disillusionment that comes from God allows us to look at others as they really are and accept them anyway because our faith is in God and not man.

This message strikes particularly close to home for me because I put this kind of pressure on my husband for a long time, especially after the miscarriages started.  I was not basing our relationship solely in Christ for a while before my faith was shaky, and then I expected him to fill the voids I felt in my spiritual life after we started losing babies.  There was no way for him to live up to all of that expectation, and I was bitterly disillusioned every time he couldn’t live up to my crazy illusion.  I tried to make my husband responsible for giving me value and worth that could only come from God.  Obviously, it didn’t work, and it endangered our relationship.  It took some serious counseling and a lot of work to change my focus and understand the importance of building a foundation on Christ alone.  That foundation afforded me the freedom to love my husband exactly the way he is.

Sometimes relationships aren’t the only thing that can hold us captive to the illusion; sometimes it’s a dream or a goal, maybe even an admirable dream or goal.  But the second we lose sight of God’s purpose for us, that dream becomes the illusion we follow with all our hearts.  Losing that dream or failing to obtain our goal is a bitter disappointment if we lost the lens filter God would have disillusioned us with – think of it as a spiritual and emotional polarizer allowing images to become clearer and more vivid.  For example, I have ceased praying that God would let me carry a baby, and most of you probably think I’m a pessimist for doing so.  But I am not sure that my dream is God’s plan for me; I have heard no words from heaven saying, “Anne, you are going to have a succesful pregnancy.”  No angels have visited my home to tell my husband that I will give birth to a child by this time next year.  There is only God telling me to trust him, so the only thing I can pray when we have become pregnant is for God to work in the situation.

I do not love this instruction.  I do not love the pain it has caused me.  I do love God, I do want to obey him, so I am trusting him.  What I have heard him tell me is that he could give me exactly what I want right now, but I would have to accept that it may not be what he really wanted me to have.  As much as I would love to give birth to a healthy child, I cannot go back to the horrible disillusionment I struggled with before.  I can’t replace God with the dream because I would not survive another round of human disillusionment.  And if God tells you that he has something planned for your future, how can you ignore that and follow an illusion instead?  Talk about the ultimate dangling carrot…

I can attest to the power of Godly disillusionment in my life, starting with my marriage and working through every relationship I have.  I only expect perfection from God, so I am less judgmental; I can accept the motives and the heart of someone rather than critically dissect their every action.  I can love more freely because I don’t expect to be loved perfectly in return; I can love myself because I don’t have to be perfect (this one is HUGE for me).  I can accept that my dreams won’t always become reality, and I can accept that I can’t see the whole picture the way that God does.  If I think of all of the losses in human terms, I go crazy and bitter and cynical.  If I base my life and my thoughts on Christ, then my only purpose is to obey him and trust him.  That I can do – most of the time.  I would be dishonest to pretend that I follow through with that every moment of every day.  When Christ alone is my foundation, I have solid ground to stand on.  When I make my own foundation or accept the world’s foundation, I have no hope for my future because I can never be perfect, and I sink in the despair of my past because of the pain and the things I failed to accomplish.  I desperately need the discipline of disillusionment.

To Cheer or Not to Cheer

Yesterday morning I really wanted to post the following status on Facebook: Today stinks, just in case you were wondering.  I didn’t post anything because I didn’t want a positive reaction from anyone.  I wanted to be miserable, and I wanted someone to know I was miserable, but I didn’t want or need anyone to try to cheer me up.  Since a cheerful comment would have only irritated me, and I didn’t want to think bad thoughts about any of my friends, I decided I should keep my post to myself.

If you have a single bit of empathy, you don’t want your friends to be miserable or hurt; your first reaction is often to cheer them up or try to encourage them out of their funk.  I’d say most of the time this is a great thing, but maybe we should allow just a little bit of funk sometimes.  We mean well, but there are times when people need to feel sad or pained or other than positive.  We need to allow each other the space to feel what we’re dealing with without pushing the person to feel something else instead.  For instance, I needed to be sad yesterday – I needed to cry or howl at the moon or scream or break dishes without anyone telling me to feel better.  It has barely been a week since the pregnancy loss; I think I am understandably negative about the situation.  I will not be sad forever, and if I’m sad and depressed for more than a few weeks, I trust that someone will encourage me (you may read “encourage me” as “kick my butt” if your name is Melissa) to move on.

While it is true that as Christians we should give thanks and find joy in every circumstance, I would encourage you to never, ever tell that to someone who has just lost a loved one or experienced a personal trauma of some sort.  It is acceptable and normal to feel negative emotions, and you must allow yourself and other people to feel them.  It is not normal or even healthy to only feel happiness.  If your friend is a sincere follower of Christ, they have not forgotten that they have the deep and abiding joy and peace of Christ in every season of life.  Reminding them in the face of their loss that they should feel joy and give thanks will probably feel like a slap to the face of their grief.  Wait for them to experience the loss and then pull them gently back to joy if they haven’t already found it.  Sometimes you need some space to gain the perspective that allows you to see the joy in a devastating circumstance.

Our Sunday school class must share a joy each week with the rest of the class.  I love this exercise because it “forces” us to consider the week and find something good that came out of it.  I don’t think anyone expected for me to have a joy to share last week, but I have been able to experience true friendship in so many ways over the last two weeks that I give thanks for my friends.  I hope that as I continue to move past this recent loss that I will find more joy and more reasons to thank God.  That is the deep love of Christ working in me, because I alone would not be able to thank God for anything related to another miscarriage.

If you have a friend experiencing loss or frustration of some kind, I encourage you to consider your responses.  If they are acting out of line (for instance, I am a jerk when I’m upset and tend to snap at others), gently call their attention to the bad behavior.  If they are just experiencing a normal emotion related to the loss, express your sympathy and offer your support without telling them to buck up, cheer up, find the bright side, or anything related to bootstraps.  You don’t mean it, but by telling your friend to change their feelings, what you are telling that person is that the negative emotion is not acceptable or appropriate.  Allow your friend to feel whatever they feel, no matter how ridiculous you may think it is.  Once they stop making forward progress or can’t work through the depression, then encourage them to find some professional help or change their outlook.  I cannot express how invaluable is the friend who can accept you as you are; those are the friends that you will listen to when you need your butt to be kicked.  If you want a friend like that, be a friend like that.  And carefully choose when to cheer and when not to cheer.

“Thanksgiving Song”

What is more grateful than thanksgiving?

What is more exclamatory than praise?

Where are the words grand enough to express your worth?

There are times without hope or joy,

But you  have mended my soul –

Darned all the holes in my heart

And stitched them up with your love.

Now I know that your mercies are new every morning –

They are new with every breath.

And now you have given me a gift of hope

Beyond anything I could imagine,

And my soul is overflowing with wordless praise.

Frantic Frog Open Invitation

Several years ago, I convinced my best friend to be my training buddy for the Frantic Frog Triathlon in Scottsboro, Alabama.  I believe she eventually came to forgive me. 🙂  We had a blast with matching suits and no expectations or delusions of grandeur, and we had the greatest cheering squad ever.  We were not fast, and our transitions took as long as some people took to complete the entire course (those are the aerodynamically built people, which I have not been in some 20 years), but we enjoyed every moment.  We are going to try it again this year in spite of the abbreviated training time.  If you would like to join us, you can find out more about the race and get registration information at: http://www.scottsborotrisport.org/  The race is September 10 in Scottsboro, and you are welcome to participate or join us to cheer and eat lunch afterwards.

If you think you’re interested, but you’re afraid of doing a triathlon, don’t be.  This is a great beginner-friendly course: the swim is shorter than a standard sprint distance; the bike course is a little longer, but it’s mostly flat; and the run (or in my case, walk until you see fans or photographers…) is hilly, but at that point, you’re almost done anyway.  With only about six weeks to train, we will not be fast this year, either, so sign up and join us!  Our motto last time was, “Don’t be last!”  But I’m thinking this year it’s going to be, “Just get done, and pretty doesn’t count!”  If you’re still on the fence about whether or not you could participate in a triathlon, send me a note or call me – you can do it!  When we nail down race day details, I’ll send out an official plea for cheerleaders. 😉

Worship

I started writing this post over a month ago, but it languished in the draft folder (a.k.a. Blog Purgatory) because I couldn’t really define what I wanted to say.  Yesterday, I experienced exactly what I knew I should write about.  I often feel that either the message or the music was chosen just for me.  This is not exactly true, as I doubt any pastor has ever written a sermon with me in mind, but it is true in the sense that God is using the lesson and/or music to speak to me or to teach me.

Yesterday, I was sure that I would be a weepy mess by the time I headed for the choir room to warm up for worship service, so I fully expected to hide in the back of the sanctuary instead of sing with the choir in the loft.  While I have been pretty numb, my walls were starting to crumble just a bit Sunday morning.  So, as I walked down the stairs from Sunday school, I prayed all the way into the choir room that I would be able to simply worship God without distracting anyone.  Maybe that’s an odd prayer, but I really take seriously the job of choir members to help lead in the worship service, which means you do not talk through the sermon in the choir loft, pick your nose, wear revealing clothing or rattle candy wrappers too loudly.  You also shouldn’t sob through sermons or songs, so I was fully prepared to just sit in the audience yesterday.  The other reason for my prayer was that I was afraid that the numbness I was feeling would keep me from being able to actually worship, and I really don’t want to continue in auto-pilot any more.  I needed to worship God yesterday morning with a body of believers.

Sitting in the choir loft gives you a bird’s eye view of the people in the pews.  I am often appalled to find that the adults who should know better are often the ones who are talking during the service or doing other distracting things, like making shopping lists or passing notes.  We can all find reasons that we couldn’t pay attention to the music or the sermon: somebody was sniffling, the music was too loud, the pastor was too quiet, somebody was wearing obnoxious perfume (maybe that caused the sniffling?), someone next to me is singing off-key, I don’t like the music, I don’t like what the pastor is saying, I have just experienced a personal tragedy… There is an endless list of things we can allow to distract us, but there is only one reason to focus. When we actively participate in worship and focus our energy on meeting God and hearing his message for us during the worship service, we will never be disappointed. It won’t matter that you don’t like every song or that it wasn’t our favorite sermon because the presence of God will wipe away all of the pettiness involved in even thinking those thoughts. Think of your favorite activity; now think of what distracts you from that while you’re actively pursuing that interest. Why is our list of things that distract us from hearing God AT CHURCH so much longer?

I think maybe the biggest component is active participation; if you’re just a spectator, you have time to sit back and complain like a backseat driver or Monday morning quarterback. If you are engaged in the worship service, you won’t be thinking about what color tie the preacher is wearing or how many notes the choir missed; you won’t care because you will be actively seeking God. Everyone can take an active part in worship: you can sing the songs and focus on their meaning, whether it’s your favorite song or not, whether you can sing well or not; you can take notes during the sermon so that you will stay focused on the topic; you can tithe at least a little bit even if you don’t have a lot of room in your budget to spare; you can decide that you won’t be a distraction to anyone else by talking or making your grocery list. You can do more than fill a seat.

If you are only filling a seat, or participating out of habit, think about why you are really there.  I did not attend Sunday school or church services regularly for over a year because I knew I didn’t mean it; I could not sing praises to God when I couldn’t even talk to him.  This was not the right thing to do, and I am not advocating for absence at all.  I am advocating for thoughtful worship.  I had to stop and think about what I really believed and decide that it is very important to me to love, serve, and worship God no matter what my personal circumstances are.  That was a long road for me, but being able to sincerely worship God yesterday in spite of knowing that my heart was breaking as it thawed was worth more than anything on earth. (And I’m pretty sure Bubba picked out all of the music just for me – again. 😉 )

Unreality

I have had the distinct feeling over the last several days that my emotional response has been lacking or even completely inappropriate, like people who laugh uncontrollably at funerals.  Wednesday, I was so relieved to at least have an answer that I was happy and upbeat the whole day.  I didn’t cry even though I wanted to.  I took the rest of the week off, mostly because I knew Thursday and Friday would be the worst part of the physical pain, so I’ve been in a bubble of Tour de France watching and crocheting.  I watched the movie Rent Thursday, and that was maybe the first time I really cried.  And it was the only time I cried Thursday.  Friday I cried because a doctor that came highly recommended from a friend who had similar problems is at a practice that I hate but not because we lost the baby – it was just a tiny taste of the frustration I know I’ll be feeling soon.  I’m glad for the respite, but I don’t want to put off dealing with the emotional pain; the longer I avoid it, the worse it bites me in the rumpus when it finally catches up with me.

Unreality is easy in the short-term – I’m not at work, so I’m not dealing with my normal daily stressors; I’m not doing normal housework or cooking or anything that generally grounds me in reality, so I’m not dealing with my normal daily life right now.  I’m on vacation, or at least my heart seems to be.  I can try to draw it back, but I can’t really make myself concentrate on feeling anything right now.  Maybe my heart’s not ready to deal with this, and that’s okay for a few days or maybe even a week, but I can’t ignore it forever.  I sort of thought that the physical pain would pull me back into reality, but I think I’ve dealt with so much stress from the cramping and pain of the last week that unreality might be the best coping mechanism for a few more days.

Long term unreality will just allow the frustration and anger and pain to hide for a while and then pop out at inopportune moments.  That’s why I would rather scream and cry now, even if it’s directed at something else.  Maybe I should watch more sad movies or talk shows I disagree with: I could vent the emotion that I know is peeking out from under the covers right now.  Maybe I’m just tired of working through the stages of grief only to start all over again and again and again.  I am too tired to be angry, but I would like to get a jump-start on sad, depressed and bargaining – they hurt the worst.  I could pretend that I’ve just jumped straight through to acceptance based on my attitude and emotions since Wednesday, but I know I’m really just on step one: denial.

Denial isn’t so bad for a short while; I have had a few days to relax and regroup before the real work starts, I’ve been able to watch the most exciting stages of the Tour de France without feeling guilty for not doing housework or something productive instead, I’ve given myself a pass for the first time in ages about not being productive (partly because I’ve been working really hard for the last few months, so I’m not as stacked up as I have been), and I’ve leaned on friends at a time when I would have normally pulled away.  Now I trust that those friends will still be there when the ugly emotions show up, and I know most of them won’t run away.  Actually, I don’t think any of you would run away.

I have begun to understand far more deeply than I ever imagined what Jesus meant when he said, “My mother and My brothers are those who hear the word of God and do it.” (Luke 8:21)  Jesus was responding to his family sending for him while he was teaching; most scholars agree that they were concerned with the direction his teaching had taken and the effect it was having on his reputation and the family’s reputation.  I have no lack of familial support, but I have friends that I count on as family, and my church family has been a sweet and cherished example of “those who hear the word of God and do it” from our first announcement; you all are certainly family now more than ever.  To that end, if you’re in the Birmingham area and don’t have a church home, you should definitely try Green Valley Baptist – I doubt you will ever find a sweeter fellowship or staff more dedicated to ministry and missions.  I’m a little biased, but I’m right. 😉

Today, I’ll putter around some more and attempt to clean the house and crochet some more.  Maybe Sunday will be more conducive to reality since I should be following a schedule and seeing people.  Seeing people always brings reality rushing in because they are dealing with the loss, too, and they will be offering words and hugs of condolence.  You cannot help but react to physical contact, and, as difficult as it may be for me to finally accept another loss, it is a necessary step forward in healing and moving on.  I have the incredible benefit of being surrounded by family when I finally face reality.

Wordless

Our hcg level dropped to 50 today, so we know that a miscarriage is imminent now.  I will stop taking the lovenox shots, I have to go back next week to re-check the hcg level, and we’ll still keep our follow-up appointment on August 1.  By next week, my hcg level should be back to zero unless there’s a problem.

I have no idea what else to say: I’m too numb to have really processed this information, even though I rather expected it after last night.  Thank you for your love and prayers and encouragement so far; I’m going to need it even more in the weeks and months to follow.  The path through grief is not easy or short no matter how much I would like to skip it.  Pray that God will hold us together through this and continue to show his love and grace through our family and friends.  I love you all, and I would not make it wthout you.